Here is a list (not at all comprehensive!) of abbreviations frequently used in melanoma discussions per the request of a melanoma patient on the MRF forum having trouble getting through the acronyms. It was fairly well received (though I'm not sure everyone read the ENTIRE list!!!) so I thought I would share it here:
NED - no evidence of disease
Obviously, I still blog (and occasionally share on the melanoma forums) the latest data in melanoma research. It takes a great deal of time and effort. At times I long to stop. Still, I know I have access to information that others do not. And...perhaps...the ability to share it in ways that makes it a bit more comprehensible to others. I receive frequent emails from folks looking for additional information. Those are a mixed bag. Some incredibly demanding and critical. Not long ago a writer really said...."I guess I could actually read your blog and find the answers to my questions, but, are you the one who had melanoma or what?" (Wow!!! The answer to that one seems pretty clear at the very top of the page! Not that she stopped there!!!) Others are clearly desperate or utterly confused. Some intelligent, thoughtful and appreciative. Still others never bother with a thank you or kiss my foot (including the one mentioned above!!!). But, many have become dear friends. A mixed bag indeed!! And, yes. Against the advice of some who care about me....I answer them all. Melanoma doesn't make you nice or smart....folks are....or aren't. But, it can make you out of your mind with worry and fear...so I try to give folks a chance. And before you start feeling sorry for me....or get the impression that I am feeling sorry for myself....the support of many...especially 'MY boys!!!' - Josh, Ed, Mat, Jonathan, Paul, Steven, John, Eric, and Brian helps keep me going and can make me laugh out loud. Many others will live in my heart forever. In total...a much greater gift to me, than any I have given.
These comments by Ed and Paul still make me smile: Abbreviation post!
Whiskey Tango Foxtrot!!!! - c