Sunday, January 13, 2013

Better Diet advice for Melanoma

I love food. I like the taste, the history, the culture, the socialization the sharing of food allows with family and friends.  When the kids were home, we all had supper together EVERY DAY. It was a cherished time together, to share our day, to learn how to carry on adult conversation, to love each other.  In my travels, the food of other cultures is a big part of the allure for me.  As a nurse practitioner I have taken at least three different college level nutrition courses. I teach parents and children about food daily.  How to introduce and make first fruits and veggies a positive experience for little 4 and 6 monthers.  How to reduce portion size, cut out junk and sweets and emphasize fruits and vegetables, while incorporating the family's budget and preferences for children who are obese.  I have helped many children and their families attain success.  For some, I have not.  Diet and nutrition advice and education are a huge part of my life EVERY DAY.

I will eat anything.  The only things I can think of that I don't particularly care for are mango, rutabagas, and papaya.  I eat more fruits and vegetables than most people can name.  Many of my meals are vegetarian.  However, I love a good steak.  I rarely eat fast food, prepackaged or processed foods, carbonated or other types of sugared drinks, fried foods, or sweets.  I do love a delicious piece of chocolate cake, fried chicken (especially the skin!!!!), and fruit desserts. I drink coffee or tea in the morning and often have wine with dinner. I practice what I preach and believe in:  I eat predominantly fruits and vegetables with whole grains, some chicken or junk and few sweets.  Nevertheless, my habit of a life-long healthy diet, still allowed me to contract melanoma...and though I continued down my healthy path, I even progressed to Stage IV.  Yet, I still advocate for a healthy diet and exercise as a part of life for EVERY person.

With all that said....there is NOTHING that makes me more angry than some charlatan selling "diet" products or even well meaning, but totally uninformed individuals, putting out information about "DIETS" that prevent or cure melanoma and other cancers!!!!  The damage here is two fold.  The "diets" don't work and desperate individuals waste precious time and treasure on these miraculous "cures and treatments", often delaying or bypassing real therapies that have some chance of actually helping them.'s the real scoop on some of the most recently touted "diets" to fix your melanoma right up....

The idea here is that if you eat no sugar or carbohydrates your body will have no glucose to feed the tumors and they will miraculously die.  Oh, what a joy it would be if things were that simple.  However, if you eat nothing but termites, dandelion leaves, and spinach - your body will turn that into glucose just as it will when you ingest nothing but cotton candy, snickers bars, and sugar cubes.  That's what our body does.  It turns quinoa and white bread, steak and chicken, turnips and chocolate....all of it...into glucose.  PERIOD.  Going sugar free to stop cancer doesn't work.  Doesn't make sense. And remember....this is from the woman who doesn't want you to eat a lot of sugar...especially if you are over weight, or if you have diabetes...for other reasons....but, this WILL NOT CURE CANCER!!!!!!  Would that it could.  But it can't.  Sorry.

Kind of the same idea.  Starve the tumor of glucose by putting the body into ketoacidosis by eating nothing but fat and protein, ie no carbs. This is the same diet Atkins made a "killing" off of for weight loss, and it does work in that some extent...though  increased cholesterol levels are noted on the diet and usually the weight returns rapidly once a normal diet is resumed.  I won't go into all the details about what a diet like this does to the arteries in your heart and brain, but just remember....Atkins admitted having experienced cardiac arrest personally!!! Some studies have shown some usefulness for a ketogenic diet in the control of seizures...but it is a very difficult diet to maintain and ironically, ketoacidosis is what one works very hard to avoid in patients with diabetes (individuals who can't metabolize glucose because they lack a fully functioning pancreas which normally produces the insulin required for the job) because it can lead to seizures, coma, and DEATH!!!  I have taken care of patients in PICU in this circumstance and they just about scared me to death!!!  I digress.  Back to melanoma. This got kicked off in the melanoma/cancer world because a radiologist noted that people who were in ketosis had less uptake in their tumors on their scans. Yet, studies done to examine this in cancer patients DO NOT show that tumors went away or that cancer patients fared any better on such a diet.   So...again...the proponents of this diet tout its magical powers to starve tumors with no real data to back it up.

Now this is a real doozy!!!  Fresh organic juices, "from 15 pounds of organically grown fruits and vegetables each day" are to be made and consumed hourly in the individual's home in order to "break down diseased tissue" while "coffee enemas aid in eliminating toxins from the liver". (Seriously, did these people not learn the children's song...the ankle bone is connected to the leg bone?  Coffee up my patoot is NOT going to connect with my liver!!!  Simultaneously, I know their response to that.  Many things, like bilirubin in jaundiced babies is excreted from the liver to the gut...and we get it out of the baby's body by getting them to poop!!!  However, this is NOT what they said on their site....I don't think they have that much sense...AND...cancer DOESN'T work like that!!!!)  For cancer patients, the web site recommends 13 glasses of raw fresh juice daily, prepared and consumed each waking hour. (How on earth would you have time to live your life if you are doing this???!!!!!) The juicer they recommend costs $2,400.00.  Additionally, they have the patients take supplements of potassium, Lugol's solution, Vit B12, Thyroid hormone, and pancreatic enzymes.  Thyroid hormone???? Really???  This is NOT something you want to mess with!!!  And THEN...ironically....Lugol's solution, an elemental iodine and potassium iodide mixture in water, was once used as a treatment for HYPERTHYROIDISM!!!!  Meaning, administering iodine causes temporary cessation of function of the thyroid gland and can lead to HYPOthyroidism!!!  No wonder they prescribe additional thyroid hormone.  On top of that, the price of Lugol's solution runs $20-25.00 per 1-2 ounces.  Furthermore, while it is used legitimately for the emergency purification of drinking water, the lethal dose of free iodine for an adult human, 2-3 grams, is about 40-60ml of 5% Lugol's solution.  Not exactly a risk free proposition is it?????  But, even more...GERSON THERAPY DOESN'T CURE CANCER!!!!!!!!!!!!  It just doesn't.  And worse, I know of at least one individual, who abandoned his cancer therapy to try it.  His melanoma grew and grew.  He kept trying to hold onto the idea that Gerson would give him the cure he sought.  It didn't.  And, when he finally realized that,  and started taking a BRAF was too late.  Things were too far along.  He is no longer with us.  I have to believe he is helping me write this blog. Gerson therapy is NOT a cancer cure!!!

WOW!!!  That's the only legitimate response to this one.  The lurid "details" of supposed cancer patients "coughing up" lung tumors that some folks have repeatedly been posting on some of the melanoma forums is just....WOW!!! Per their site, Cellect is a dietary supplement that comes in capsules or a chocolate, strawberry or vanilla flavored powder.  You are to take at least one "serving" per day which is the equivalent of 24 capsules or 1 scoop of powder along with three cod liver gel caps daily.  The cost for a one month supply of one "serving" daily dosing (caps or powder) is a mere $100.00.  For an individual weighing 100-175 pounds the site recommends the one scoop daily regimen for "maintenance".  To "Slow Symptoms" you need 48 caps or 2 scoops plus cod liver oil daily...or....$200.00 per month.  For "chemistry support with a maximum weight of 175 pounds" you need triple the dose...and the price...$300.00 per month.  And if you weigh more than 175, you will require 96 caps or 4 scoops daily at a cost of $400.00 a month!!!!  So...what is in this magical elixir???  Vitamins A, C, D3, E, Calcium (68% of recommended daily value), Iron (at 10% of RDV), iodine, magnesium, zinc, selenium, and chromium.  Here's the best hot news I can give you folks!!!!  Ready?????  For $4-13.00 depending on can get 100 tablets of a Women's daily multivitamin. In each daily vitamin, you will get the exact same thing as one "SCOOP" of Cellect minus the iodine...but if you eat one teaspoon of salt per are more than covered.  Plus, the one a day vitamin will give you 100% of the recommended daily value of iron. Two final points:  1. The Cellect web site repeatedly warns about the risk of "loose bowels", "diarrhea", and "upset stomachs".  With all those vitamins washed down with a healthy dose of cod liver oil....I guess so!!!  If you are taking ipi or anti-PD1..PLEASE reconsider before starting this business!!!!  You could get disqualified from your trial, or from ever getting to participate in another one for these drugs, because of "collitis" which is an inherent risk with these immunotherapies, that was perhaps brought on by Cellect.  2. And I think this says it all... In 4 different places on the Cellect web site THEY say:  "Please know that CELLECT, or any person relative to this product do not make any implications, promises, nor guarantees that CELLECT will reverse any disease."  "CELLECT is a dietary supplement manufactured and formulated by CELLECT. It is manufactured to meet the highest quality and standards set by Cellect."  Please tell me that the rest of you are laughing out loud...or at least staring incredulously at the screen.  CELLECT can't even make any claims to help you because they would have their pants (probably very expensive pants) sued off them if they did, cause it's just not true!!!  AND....they make CELLECT in order to meet "the highest quality and standards" (What on earth does that even mean???) "set by Cellect."  Set by:  themselves. I like how they capitalized CELLECT in all their crap except when they note that the "standards" were set by "Cellect".  Nice touch, huh?  I warned you!!!  WOW!!!!!!!!!!

SO.....lets make melanoma better in 2013.

I do not want another person to give up what might be a viable treatment...and believe melanoma world....they all suck great big hairy green giant wizard balls...just to fall for snake oil and its salesmen.  No matter how convincingly packaged.  No matter how adamant the testimonials.  Do your research. Talk to a real live melanoma oncologist. Think about whether the things you are advised to do really make sense.  Eat right. Get some exercise.  Hang tough.  You've got me and a lot of other ratties on your side.  Yours - c


  1. I wish it were as simple as a good diet! If that were the case, you would never have gotten cancer in the first place! You have always eaten well! (Of course, when we were kids, I could count on you to eat my nasty chicken skin!) I know you have continued to eat all the right things, and exercise as well... Unfortunately, it doesn't get rid of cancer any better than it prevents it. The people trying to market these diets to those desperate for a cure make me so angry. It takes the lowest of the low to prey on people in this situation. Thanks for putting this information out there, and I hope it reaches many!

  2. I keep reading these posts that say to eat a low carb diet, or give up meat. Then I went to the research which said that a high carb, higher protein diet was associated with less melanoma. The only dietary recommendations that I find the experts making are to eat things like cabbage, broccoli, brussels sprouts, turnips, and protein foods like egg,s chicken fish, beef, pork, turkey, and brazil nuts and mushrooms because the protein foods and mushrooms are high in selenium. We eat a pretty decent diet here, although more white flour/white sugar products than is probably optimal and we have for years. My husband still developed melanoma and had it go to stage 4.. I've upped the fresh veggies in our diet, and got him taking vitamin D and omega 3, but I watched a family in our homeschool group go through the whole Gershon thing for naught. It meant spending a lot of time juicing carrots that could have been spent at more pleasant pursuits in the last months of the father of the family's life. At the moment my husband is on no therapy. He's had several surgeries, he's had focused radiation, but we opted to not do interferon and to hold off on the ippilimumab, at least for now. We have a CT scan and an MRI, and an EEG scheduled for later this month. Hopefully everything will still be clear as it was in April. If it's not we'll listen to what the melanoma guys recommend. We won't be buying an expensive juicer.

    1. Good for you, Liz. Common sense is often well worth listening are the experts when you need them. I wish you and your husband the very best. May you have clear scans this month and always!!! c