Sunday, August 28, 2011

A whiter shade of pale...

I've had a great weekend with Brent and friends. The weather remains really dry here, but quite beautiful.

I have continued to feel well despite bouts of itching, which are fairly manageable with Benadryl. The vitiligo (absence of pigment in the skin) has increased rather dramatically. I even fancy that the itching seems to occur most in the areas that then suddenly develop increased vitiligo...but that may not be an absolute. At any rate, it is no longer a question of its presence at all. It will be interesting to see what Dr. Weber has to say about it when I see him on Sept 9. I will be repeating all my scans on Sept 2, so I will keep everyone posted with the results as soon as I know them.

There is an interesting webinar on anti-PD1. It really explains the entire mechanism in a very understandable way. The speaker also addresses the work that Dr. Weber is doing.

If you are interested, go to:

Click on the anti-PD1 webinar. You will be asked for your name and email address in order to watch but that is all.

If you do watch....two points from the question and answer session I can clarify. Dr. Weber did not choose patients with specific HLA typing due to what he is testing with anti-PD1, but because of the concomitant use of the vaccines, which makes that typing necessary or the vaccines won't possibly work. Also, at least some of the patients in Weber's trial ARE treatment naive, at least having had only radiation and surgical procedures, like myself, but no other chemical agents.

..and so it was that later, as the miller told his tale, that her face at first just ghostly, turned a whiter shade of pale....(B never gets my musical allusions!!!!!)
May you skip a light fandango!!!! - c


  1. Sounds like it is better you did PD1 than ipi? More specific to melanoma cells?

  2. Brent and I talked about that and I don't think anti-PD1 is really more specific to the cancer cell, but just more specific generally, thereby decreasing the side effects. That's our take anyway.