My heart breaks. Read Pati's husband's post on her blog: Leap and Live
How can this be? How can this be a month already? How can TIL...the quintessential melanoma therapy...end in death....not success?
I know how. Pati didn't die of melanoma....actually. She died of sepsis. And DIC (disseminated intravascular coagulation.....I'm sorry, just use google and wiki....I don't have the strength.) I've seen it too many times...in other machinations...in other circumstances. The result is far too often...the same.
That which is to cure us can certainly kill us. Then, there's POW on MPIP telling people not to say that Interferon is "liquid poison"! She doesn't have melanoma! She hasn't taken interferon! Neither have I!!! To those of you that have partaken of the bitter pill...call it whatever you like! To those of you that have suffered with studies that have been disbanded, unreported, found unsuccessful.....
I am so sorry. I will fight for each you...for your right to say what you will....to have the legitimate report that you deserve...for the right to pursue other therapies (even if the company wants to PRETEND the one you received was legit). I don't know how much good I can do...but I will not stop!
MERDE!!!!!!!!!!!!!!!!!!!!!!!! - c
Merde, indeed!!!!!
ReplyDelete