tag:blogger.com,1999:blog-5986812882047614235.post4376932516566618982..comments2024-01-15T13:54:44.833-05:00Comments on Chaotically Precise: Life, Love, and Melanoma: All things vitiligoLeshttp://www.blogger.com/profile/07988740020076170293noreply@blogger.comBlogger5125tag:blogger.com,1999:blog-5986812882047614235.post-21271199861123246102016-09-28T14:31:14.836-04:002016-09-28T14:31:14.836-04:00I understand. Adjuvant treatments are sorely lacki...I understand. Adjuvant treatments are sorely lacking in most countries, including here in the United States, and drives me crazy! You can only do the best you can and it sounds as though you are. Additionally, as noted in the links to many articles noted above...yes...vitiligo is generally a good prognostic sign. Bon suerte, mi amigo. CLeshttps://www.blogger.com/profile/07988740020076170293noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-23846275096883463552016-09-28T13:24:41.907-04:002016-09-28T13:24:41.907-04:00Hi Les, how are you?
Yes, I know, there is no imp...Hi Les, how are you?<br /><br />Yes, I know, there is no impact on overal survival, the treatment with Intrerferon.<br /><br />All these medicines including Ipilimumab was not allowed to be used in the adjuvant setting. Stage III patients could only be offered Interferon, unfortunally.<br /><br />My luck is that vitiligo with any therapy I think has a promisse of a better outcome. Including the treatment with Interferon. There is a pretty famous study that I can share with you:<br /><br />Prognostic Significance of Autoimmunity during Treatment of Melanoma with Interferon:<br />http://www.nejm.org/doi/full/10.1056/NEJMoa053007<br /><br />Now I have Nivolumab available for me, but my insurance plan wont pay it yet bacause I am not a metastatic patient.<br /><br />I have scans done every 3 months. No signs of the disease.<br /><br />Got to know your blog searching for new researches on melanoma and. vitiligo.<br /><br />Les, good luck tou you and thanks for putting up good information on your blog.<br /><br />Abraços do Brasil.<br /><br />HOSPEDAGEM Hotel da WEB - QUALIDADE DUVIDOSAhttps://www.blogger.com/profile/03523337921198908830noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-59410041479022232292016-09-28T02:57:00.226-04:002016-09-28T02:57:00.226-04:00Sorry that you are dealing with this. It shows the...Sorry that you are dealing with this. It shows the importance of dealing with melanoma sooner rather than later, though you may have had no other treatment options at the time of your original dx other than 'watch and wait'. From what you describe you would indeed be Stage III. I am glad the resection and radiation have eradicated the positive nodes. I hope you have had scans to determine the status of the rest of your body. Unfortunately, interferon has been proven to have little significant impact on melanoma and NO effect on overall survival. Hence forth I hope you remain vigilent and can attain a better systemic therapy should you need it. I wish you well.Leshttps://www.blogger.com/profile/07988740020076170293noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-81667601734283814132016-09-27T21:06:51.536-04:002016-09-27T21:06:51.536-04:00Came to bring words of confort for those with viti...Came to bring words of confort for those with vitiligo and melanoma.<br /><br />I had a mole removed 8 years ago in a public hospital here in Brazil and never went pick the resultus.<br /><br />4 years later i developed vitiligo on my face and chest. tought it was becouse of stress..<br /><br />last year I had an injury at the gym and my lymph nodes had swollen to the size of a tenis ball. I that time thought it was becouse of the injuty, it was painless, and I spent 4 more months without going to the doctor...and still working out everyday. Doing high intensity exercises...<br /><br />When I went to the doctor we dicovered about the mole, that I lived 7 years with melanoma and that the vitiligo was becouse of it.<br /><br />I had 31 lymphnodes ressected, which 13 was melanoma postive. Did radiotherapy for 30 days.<br /><br />When I began treatment Ipilimumab was not "brazilian fda" approved. So I am curretly on my 15th month of High dose PegInterferon...<br /><br />So far I dont have no signs of Melanoma in my body. Amazing, I think. By what happened I shoud be stage IV. Not IIIc.<br /><br />I hate a relation o gratitude and hate about vitiligo. <br /><br />I started depigment on pourpse what is left of melanin on my face whin Monobenzone at 20%...There are some studies that tries to mimic the effect of vitiligo using Monbenzone against melanin in general and melanoma cells...In vitro.<br /><br />My depigmentation with Monobenzone is purely for cosmetic reason today. To have an even tone in my face ( about 90% of my face has no pigment due to vitiligo)...Dont want to get better from vitiligo, really. So why not expend it a little bit.<br /><br />For the doctors reading this I am using Monobenzone during my HD Interferon treatment. My doctor is not aware of my Monobenzone usage. Side effects have worsen, but is tolerable.<br /><br />Thats it. Luck to you guys.<br /><br />Rodrigo Faria<br />www.rodrigofaria.com.br<br /><br />HOSPEDAGEM Hotel da WEB - QUALIDADE DUVIDOSAhttps://www.blogger.com/profile/03523337921198908830noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-75246921920826567122016-09-06T12:29:20.753-04:002016-09-06T12:29:20.753-04:00Yes! I love these reports!Yes! I love these reports!Ruth Scotthttps://www.blogger.com/profile/09423232789147004097noreply@blogger.com