tag:blogger.com,1999:blog-5986812882047614235.post8051975680638051081..comments2024-01-15T13:54:44.833-05:00Comments on Chaotically Precise: Life, Love, and Melanoma: Adjuvant treatments in melanoma - They WORK!!! Now, let's make sure people can get them!!!!!Leshttp://www.blogger.com/profile/07988740020076170293noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-5986812882047614235.post-70414730944257160202018-03-12T21:45:03.828-04:002018-03-12T21:45:03.828-04:00Larry, So sorry for all that you have been through...Larry, So sorry for all that you have been through. I write about melanoma data. Demoplastic tumors are a variant of that. But I am not absolutely sure how much cross over there will be....but if you tumor is superficial...near the surface...it seems to me that you would be a great candidate for intralesional therapy. Medicines that are injected directly into the lesion. Here are a bunch of reports on intralesional (or intra-tumoral) therapy: https://chaoticallypreciselifeloveandmelanoma.blogspot.com/search?q=intralesional&max-results=20&by-date=true<br />I think T-VEC or PV-10 are showing the best promise (but that's just a gut reaction) and many are being given at the same time as immunotherapy (the Opdivo/Yervoy and Keytruda you are currently on). Make sure you are seeing a melanoma specialist. Talk to your doc to see if these are an option for you. I wish you my best. There was a really good article talking about this very thing in: Cancers 2015, 7, 1154-1177 by Gabriel and Skitzki. Get your doc to look it up!!!! OR...call the docs who wrote it at Roswell Park Cancer Institute, Buffalo, NY 14263 You can email them at: emmanuel.gabriel@roswellpark.org<br /> CelesteLeshttps://www.blogger.com/profile/07988740020076170293noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-51258299485698671092018-03-12T17:34:50.485-04:002018-03-12T17:34:50.485-04:00Sure wish I could understand what you are writing ...Sure wish I could understand what you are writing about. Guess I don't understand all the jargon. I have a large Desmoplastic tumor on the right side of my head, where they took my ear....ear canal... and Mastoid bone a year and ten months ago. Reoccured in same area. Placed on Keytruda for four months. Tumor doubled in size. Then placed on Opdivo and Yervoy for 3 treatments with no luck. Now on a treatment known as "wait and see", as this thing continues to expand outward. Is there no other hope for me (can't have any more radiation or Chemo in the area) or is this just the way I have to live out my life ?? Thank You..........LarryLarry L.https://www.blogger.com/profile/18355482791611001209noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-39091201160208585032017-10-20T15:04:31.780-04:002017-10-20T15:04:31.780-04:00Well....not so bad with a dose of "stories&qu...Well....not so bad with a dose of "stories"....esp when the nurse chimes in..."ooooh a 'happy' story"!!!!!Leshttps://www.blogger.com/profile/07988740020076170293noreply@blogger.comtag:blogger.com,1999:blog-5986812882047614235.post-6670580573840150582017-10-20T12:54:24.338-04:002017-10-20T12:54:24.338-04:00And those vaccines were the WORST! :(
And those vaccines were the WORST! :(<br />Ruth Scotthttps://www.blogger.com/profile/09423232789147004097noreply@blogger.com